Cystic Fibrosis Twin and Sib Study

Johns Hopkins University

 
General Study Information

The CF Twin/Sib Study team is conducting a nationwide collection of twins and siblings with CF, sponsored by the Cystic Fibrosis Foundation and the National Institutes of Health. We are obtaining a blood sample from twins, siblings, and their parents, and clinical information from the affected twins and siblings. All information collected will be kept confidential and will be used solely for CF research.

This information will be used to determine which patient symptoms may be attributed to the CF (CFTR) gene and which to other possible genes. It will also be used to study the interaction of genes and environment in CF and the effect this has on disease course.

For more information about our studies, please view our Study Protocol.

 

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Study Sponsors

Johns Hopkins Medicine and The Johns Hopkins Hospital

 

National Institutes of Health

 

Cystic Fibrosis Foundation

 

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